Research Study of the Genetics of Kidney Disease

Give your patients a direct role in kidney genetics research

A saliva sample from home. No clinic visit. No follow-up required from you. Your patients contribute to one of the most comprehensive genetic studies of kidney disease in the U.S.

Become a research partner
Find yourself here
Why your role matters

Every clinical role has a natural entry point. Find yours.

PHYSICIANS

One mention. The study does the rest.

30-second mention + a take-home flyer is enough. No follow-up required from you. Study handles everything downstream.

SAMPLE LANGUAGE

"There's a national genetics study for kidney disease — done from home, about 15 to 30 minutes. Here's a card if you're interested."

NURSES

You have the most relational conversations.

You have the time and the relationship to make this feel like a conversation, not a request. Patients often find this personally meaningful alongside a new diagnosis.

"I have something you might find interesting. It's a genetics study, done from home. Takes about 15 to 30 minutes. I'll tuck the flyer in your folder."

Natural integration

Nephrology Social Workers

A resource for patients who want to act.

This study is never something to raise during crisis moments — it's a quiet option for patients who ask about research or want to feel less passive.

How to introduce it

"Place materials in your office or include them in resource packets you give patients. Let them find these on their own terms."

Become a research partner

ADVANCED PRACTICE PROVIDERS

RENAL DIETITIANS

Waiting Room Poster

Bulletin board or framed wall spot.

🔒 Enroll first to embed your personal tracking code into all downloads.

Take-Home Flyer

Everything you need to introduce the study to your patients.

Digital Badge

We'll email your badge. Exclusive to Founding Partners.

Everything you need to share this research opportunity with patients. Enroll to get your personalized tracking code or download with the sample code below.

Materials library
How to use these materials

Routine visit

Leave a card or flyer. Patients who are interested will follow up on their own time — no clinical follow-up needed from you.

Most common for: Physicians, NP

Patient asks about family risk

A natural opening: mention that genetics research is actively studying inheritance patterns in kidney disease.

Most common for: Physicians, Renal Dietitians

Newly diagnosed patient

Some patients want to do something with their diagnosis. This gives them a concrete, low-effort option.

Most common for: Renal Dietitians, Social Workers

Three moments when it comes up naturally
How it works for your patient
The entire process is remote and self-managed

No clinic involvement after the referral.

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You share your code

Hand out your personalized referral card, flyer, or link. Takes seconds at any touchpoint.

Patient enrolls at home

They visit kdstudy.org, register, and request a saliva kit. The study team handles all follow-up.

You see your impact

Your partner dashboard tracks every enrollment. Quarterly reports show your cohort's contribution to the study.

What you get when you enroll

Track your contribution and get recognized for helping patients participate in kidney disease research:

Your Tracking Code

A unique code embedded in your materials. Every patient who enrolls using your code gets counted back to you. Quarterly reports show your impact.

Research Partner

A digital badge for your email signature, LinkedIn, or website. Yours from the moment you are verified during enrollment.

Founding Partner

The first 75 verified enrollments receive permanent Founding Partner designation — listed forever on the program site, with a permanent badge and physical welcome kit.

Top Contributing Partner

Top Contributing Partners are named annually on the program site and receive a distinct Top Contributing Partner badge for email signatures, LinkedIn, or your website.

Or post it and tag us
→ Instagram: @RugccSocial

→ Facebook: @Rutgers University Genetics Coordinating Center

INSTANT SETUP

At ENROLLMENT

Closes September 1, 2026

ANNUAL AWARD

Earned — For Partners Who Go Further
Universal — For Every Partner
What this is — and isn't

A voluntary referral program

What it IS

A way to share study information with patients

Co-branded with NKF/Rutgers study

Professional recognition for your contribution

What it is NOT

An accreditation or certification

An inducement or payment program

A patient data-sharing workflow

An endorsement of your clinical work

Common questions
Things clinicians ask us
What is the Frontline Research Partners program?
A voluntary program for community clinicians, renal dietitians, and nephrology social workers who share IRB-approved information about The Rutgers University Study of the Genetics of Kidney Disease with their patients.
Who runs it?
The program is run by the study team at Rutgers — principal investigator Dr. Tara Matise — in partnership with the National Kidney Foundation. The Regeneron Genetics Center is the collaborating lab for genetic sequencing.
Is this an accreditation or certification?
No. It is not an accreditation, certification, or credential of any kind. The program does not certify your practice, your competence, or anything else. It’s a preferred-partner program — a structured way to work together on patient referrals to the study.
Can my practice receive patient-level data?
No, not through this program. Practices that want or require a limited set of individual-level data may pursue a deeper integration by contacting us at partners@kdstudy.org.
Is this an interventional clinical trial?
No, the Rutgers study is an observational genetics study, not an interventional clinical trial. Participants provide a saliva sample and answer online surveys. They do not receive an investigational drug or device. The study is registered on ClinicalTrials.gov
Is my practice paid for participating?
No. There is no payment, royalty, or financial benefit to partners or their practices for patient referrals or any other program activity. This is intentional and non-negotiable — paying for patient referrals to research would raise serious ethical and regulatory concerns.
Can I adapt or create my own materials?
No — the materials are IRB-approved and can't be altered or replicated independently. If you need a variant for your practice (different language, size, or co-branding), email partners@kdstudy.org and we'll evaluate.
What is the Frontline Research Partners program
A voluntary program for community clinicians, renal dietitians, and nephrology social workers who share IRB-approved information about The Rutgers University Study of the Genetics of Kidney Disease with their patients.
Who runs it?
The program is run by the study team at Rutgers — principal investigator Dr. Tara Matise, PhD — in partnership with the National Kidney Foundation. The Regeneron Genetics Center is the collaborating lab for genetic sequencing
Is this an accreditation or certification
No. It is not an accreditation, certification, or credential of any kind. The program does not certify your practice, your competence, or anything else. It’s a preferred-partner program — a structured way to work together on patient referrals to the study.
Can my practice receive patient-level data?
No, not through this program. Practices that want or require a limited set of individual-level data may pursue a deeper integration by contacting us at partners@kdstudy.org.
Is this an interventional clinical trial?

No, the Rutgers study is an observational genetics study, not an interventional clinical trial. Participants provide a saliva sample and answer online surveys. They do not receive an investigational drug or device. The study is registered on ClinicalTrials.gov

Is my practice paid for participating?

No. There is no payment, royalty, or financial benefit to partners or their practices for patient referrals or any other program activity. This is intentional and non-negotiable — paying for patient referrals to research would raise serious ethical and regulatory concerns.

Can I adapt or create my own materials?
No — the materials are IRB-approved and can't be altered or replicated independently. If you need a variant for your practice (different language, size, or co-branding), email partners@kdstudy.org and we'll evaluate.

From the organizers of this program

Genetics in Kidney Health Summit

September 17–19, 2026

Learn more →

Ready to bring your patients into kidney disease research?

Enrollment takes five minutes. The science it generates lasts a generation.

Become a research partner

© 2025 Rutgers University Genetics Coordinating Center

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